Upcoming 'data meetings' on clinical research data management on June 7 and 18

Open science and the GDPR: two seemingly contradictory guidelines for clinical research. How can we share research data while simultaneously protecting personal data?

To help make sense of this apparent dichotomy, the Information Systems Department (DSI) and the Scientific Information Resources Center (CeRIS) are running two "data meetings" about clinical research data, featuring guest speakers with expertise on the various questions associated with this topic.

The aim is to help you understand current issues regarding clinical research data and to offer practical advice on data management.

You are warmly invited to come along to one of the two data meetings, which will be held on June 7 and 18, 2019, from 2.30 to 4.30pm in the Jules Bordet room (on the ground floor of the Metchnikoff building). The presentations will be in French.

Please sign up here

 

Program:

Context and key issues: open science vs. data protection

1/ The nature and origins of clinical research data (Nathalie Jolly, Clinical Core of the Center for Translational Science)

2/ Competing values: the case of genomic data (Virginie Pirard, Ethics Unit)

3/ Commons system and open data (Anne-Laure Morin, Legal Affairs Department)

4/ The GDPR in clinical research (Anne-Laure Morin, Legal Affairs Department, and Anne-Caroline Delétoille, DSI)

5/ Storage methods for clinical research data and how long data can be kept (Bérengère Menu, Legal Affairs Department)

Data management in practice

6/ Planning your research: the data management plan and FAIR principles (Fanny Sébire, CeRIS, and Anne-Caroline Delétoille, DSI)

7/ Best practices for managing data with REDCap (Marie Sanchez, DSI)

8/ Secure sharing of personal data (Stanislas Poiraud, Information Systems Security Manager)

9/ Using PaDaWaN for research (Stéphane Fournier, DSI)

 

Contacts:

Organizers of the data meetings: Anne-Caroline Delétoille (anne-caroline.deletoille@pasteur.fr) and Fanny Sébire (fanny.sebire@pasteur.fr)