Organizing discussion days with patient associations

The Center for Translational Science is launching an initiative at the Institut Pasteur to promote dialog with patient associations. As part of this process, the Center held discussions on the topic last year with Inserm and the Institut Curie.

This was followed on May 25 by a day aimed primarily at healthy volunteers in contact with Institut Pasteur's scientists via the Center's ICAReB platform (see on Twitter). This event gave the scientists the opportunity to explain clearly to the volunteers what their samples were used for and what results were obtained.

The Center is now offering to help units that are interested in organizing days with patients, to make sure the resulting discussions are as valuable as possible. To encourage PhD students to organize these discussion days, the Center for Translational Science and the Education Center will be visiting doctoral schools in September with the aim of persuading them to recognize the organization of this type of event as a doctoral school module.

If you are interested in this initiative, please contact us at: crt@pasteur.fr

Find out more: the minutes of the three round tables and the workshops from last year's day can be consulted on the page "Patients chercheurs vers un nouveau dialogue" (A new dialog between patients and scientists) (in French)

Themes of the round tables:

Identifying the past and present role of patients in research
Procedures for consent and sharing sensitive data
Tools to improve communication between patients and scientists